Tim is good with words, so i'm just going to copy and paste his words...
We are asking for your prayers for Ryan. This week, he had a doctor's appointment and his weight is still about the same as it has been for the past several months. According to the doctor, low weight is a small issue, but the fact that he is not gaining is a bigger issue. We are taking Ryan to Children's Hospital in Philadelphia next Friday, 3/20 for a sweat test to determine whether he has Cystic Fibrosis. We will get the results the following Monday, 3/23. The doctor said he does not necessarily suspect CF, but it is the next thing they want to try to rule out as we try to find the root cause.
If you are like us and don't know much about CF, you can read about it at www.cff.org or http://en.wikipedia.org/wiki/Cystic_fibrosis. From what we have read, plus what we can tell from observing Ryan and looking at family history, it does not seem "likely" that he has it, but we are still stuck between hoping for the best but bracing for the worst.
Our prayer is that it will not be CF, that the doctors would be able to find out what is actually wrong, and that we would be able to trust the Lord no matter what the outcome.
Thanks for praying with us.
In Christ,
Tim and Jen
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Hey Jen, I'm praying for Ryan! When they did the blood tests before, do you know if they tested for Celiac disease (wheat gluten intolerance)? I'm sure you get alot of "helpful" opinions but this is just the first thing I thought of because we are looking into this for me. Anyhow, here's a Celiac website that has a link to check out different symptoms: http://www.celiaccentral.org/About-Celiac-Disease/21/
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